Monthly Patient & Carer Support Meetings (NAC)

For current meeting go here  
Recordings of all meetings are available here: audio with slides  
Date Speaker Title Time Starts Duration
May 2016 Jenny Ratner Patients Involvement in Research 0' 0' 00secs 0' 50' 10secs
  Graham Atherton Patients Involvement Network & FIT are 25  0' 50' 10secs 1' 27' 15secs
  Led by Graham Atherton Entire Meeting    
April 2016 Graham Atherton 7th Advances Against Aspergillosis for Patients 0' 0' 00secs 0' 41' 56secs
  Reyenna Sheehan Importance of highly effective sputum collection, and how to achieve it. 0' 41' 56secs 0' 25' 00secs
    Entire Meeting    
March 2016 Ritesh Agarwal MD Sinusitus & ABPA 0' 0' 00secs 0' 16' 15secs
  Richard Moss MD Allergic Aspergillosis & Cystic Fibrosis 0' 16' 15secs 0' 16' 20secs
  Darius Armstrong-James FRCP NAC Satellite Clinic in London 0' 32' 35secs 0' 15' 05secs
  Stuart Levitz MD Fungal Vaccines 0' 47' 45secs 0' 13' 20secs
  Jeanette Boyd European Lung Foundation 1' 01' 05secs 0' 16' 35secs
  Vicky Barber British Lung Foundation 1' 17' 40secs 0' 7' 10secs
  Led by Graham Atherton Entire meeting    
February 2016 Graham Atherton Shortened Meeting 0' 0' 00secs 0' 35' 00secs
December 2015 Graham Atherton Christmas Quiz 0' 0' 00secs 0' 55' 00secs
  Chris Harris Group Poem   end
November 2015 Chris Kosmidis Introduction to Isavuconazole: a new antifungal drug 0' 0' 00secs 0' 36' 40secs
  Graham Atherton Patients & carer discussion 0' 36' 40secs end
October 2015 Maria Gamaletsou Introduction to the background of our new medic 0' 0' 00secs 0' 26' 40secs
  Graham Atherton ERS 2015 & Take the Active Option 0' 26' 40secs 1' 23' 40secs
September 2015 Phil Langridge The variety and use of positive expiratory pressure devices to aid mucus clearance 0' 0' 00secs
  Graham Atherton [email protected] 1' 11' 35secs 1' 39' 17secs
August 2015 Alan Savage Home Care, health and use of social resources in the local community 0' 0' 00secs 0' 52' 30secs
  Chris Harris Poetry 0' 52' 30secs 1' 09' 35secs
  Graham Atherton Planning Autumn Booklet 1' 09' 35secs 1' 43' 00secs
July 2015 Gemma Hayes  Aspergillosis, Asthma & ABPA: Where we are and where we are going.  0' 00' 00secs 0' 26' 45secs
  Chris Harris Skype consults & creative writing 0' 26' 45secs end
June 2015 Graham Atherton & Chris Harris Biomes, Diagnostics & Travel Tips    
May 2015 Chris Kosmidis Q & A session 0' 31' 40secs 0' 48' 40secs
April 2015 Malcolm Richardson Tour of diagnostics labs    
March 2015 NCG Commissioner Funding meeting for NAC    
February 2015 Debbie Kennedy (Specialist Nurse in Aspergillosis) Antifungal drugs and their management 0' 00' 00secs 0' 24' 20secs
  Graham Atherton Antifungal Interactions, Spring booklet, London Marathon    
    Entire Meeting   1' 16' 25secs
December 2014 Graham Atherton Christmas Quiz 0' 00' 00secs  
    Entire meeting   1' 35' 45secs
November 2014 MSc Students Personal introductions to Medical Mycology in many different countries 0' 00' 00secs 0' 33' 00secs
  Evelyn Her own story & why this group is worthwhile for patients 0' 33' 00secs 0' 46' 45secs
  Graham Atherton Entire meeting   1' 35' 45secs
October 2014 Graham Atherton Diagnosing aspergillosis 0' 00' 00secs 1' 31' 39secs
  Graham Atherton Entire Meeting   1' 31' 39secs
September 2014 Danielle Yuill Giving patients & carers a VOICE  0' 00' 00secs 54' 15secs
  Chris Harris Healthier together, CallPlus, Ring & Ride 54' 15secs 1' 11' 30secs
  Graham Atherton Entire Meeting   1' 27' 30secs
August 2014 Chris Harris Self help: a letter from a patient 0' 00' 00secs 10' 05secs
  William Kidd Damp homes & health: Help from the Institute of Specialist Surveyors & Engineers (www.isse.org.uk) 10' 05secs 1' 44' 5secs
  Graham Atherton Entire Meeting   1' 54' 10secs
July 2014 Graham Atherton Heatwaves: Precautions, Antifungal drug resistance in the environment 0'00'00secs 37' 30secs
  David Denning Managing our deaths better 0' 37' 30secs 1' 11' 20secs
  Led by Graham Atherton Entire Meeting   1' 48' 50secs
June 2014 Chris Kosmidis Side effects of long term steroid use 0' 00' 00secs 27' 20secs
  Graham Atherton Open the windows: A poetry and music awareness event 27'20secs 1' 47' 25secs
  Led by Graham Atherton Entire Meeting   1' 47' 25secs
May 2014 Paul Bowyer Latest NAC research results: ABPA 0' 00' 00secs 0' 36' 43secs
May 2014 Chris Harris Travel Tips 0' 51' 30secs 0' 13' 00secs
May 2014 Graham Atherton  Several topics including discussions on defective sunblocks, recent developments in diagnostics & treatment and beginning a discussion on end of life planning for chronic respiratory patients. 0' 36' 43secs 1' 03' 16secs
  Graham Atherton Entire Meeting   1' 40' 27secs
April 2014 Graham Atherton Offline community building (Newsletter)  0' 00' 00secs 0' 34' 50secs
April 2014 Chris Harris 5th Anniversary of the National Aspergillosis Centre 0' 34' 50secs 0' 38' 10secs
April 2014 Led by Graham Atherton Entire meeting   1' 24' 45secs
March 2014 Graham Atherton Offline community building 0' 00' 00secs 0' 23' 00secs
February 2014 Graham Atherton Building offline community (Entire meeting) 0' 00' 00secs 1' 36' 06secs
January 2014 Graham Atherton New antifungal drug class reported 0' 00' 00secs  
January 2014 Pippa Newton What is Pseudomonas? 0' 31' 15secs  
January 2014 Led by Graham Atherton Entire meeting   1' 45' 26"secs
December 2013 Led by Graham Atherton Christmas Quiz 2013   1' 12' 29''secs
November 2013 Caroline Hawkridge Using Creative Projects to enhance awareness 0' 00' 00secs  
November 2013 Graham Atherton How antifungal drugs work 0' 40' 59secs  
November 2013 Led by Graham Atherton Entire meeting   1' 31' 56''secs
October 2013 Danielle Yuill Giving patients a VOICE project (Patients helping in research at NAC) 0 00' 00''secs  
October 2013 Graham Atherton Interpreting chest X-rays 0 51' 22''secs  
October 2013 Led by Graham Atherton Entire meeting   1 27' 47''secs
September 2013 Eavan Muldoon Comparing parts of UK & US Healthcare systems 0' 00' 00secs  
September 2013 Graham Atherton IgG - summary for the layperson 0' 29' 14secs  
September 2013 Led by Graham Atherton Entire meeting   1' 22' 01secs
August 2013 David Denning Management of Chronic Pulmonary Aspergillosis 0' 00' 00secs  
August 2013 Graham Atherton IgE summary for the layperson 0' 55' 43secs  
August 2013 Led by Graham Atherton Entire meeting   1' 24' 06secs
July 2013 Julia Hamer NHS New Structure and NAC 0' 00' 00secs  
July 2013 Graham Atherton Heatwaves 0' 40' 00secs  
July 2013 Graham Atherton Side effects of medications 0' 55' 55secs  
July 2013 Led by Graham Atherton Entire meeting   1' 55' 48secs
June 2013 Steve Webster Caring for Carers 0' 00' 00secs  
June 2013 Graham Atherton Damp Homes & Health 0' 35' 53secs  
June 2013 Led by Graham Atherton Entire meeting   01' 21' 17secs
May 2013 Phil Langridge Managing Breathlessness 0' 00' 00secs
May 2013 Alison Wearden Psychology: Stress and aspergillosis 0' 31' 56secs  
May 2013 Led by Graham Atherton Entire meeting   01' 35' 36secs
April 2013 Mike Bromley New antifungal drugs 0' 00' 00secs  
April 2013 Iain Page TB & Aspergillosis in Gulu, Africa 0' 38' 54secs  
April 2013 Led by Graham Atherton Entire meeting   01' 23' 3secs
March 2013 Caroline Hawkridge Creative writing projects   00' 20' 16secs
March 2013 Riina Richardson How to avoid exposure to moulds 0' 30secs  
March 2013 Phil Langridge Staying strong in hospital 28' 19secs  
March 2013 Led by Graham Atherton Entire meeting   1' 32' 53secs
   
  •  Includes Allergy free gardening
1' 22' 39secs  
February 2013 Dr. Khaled Al-shair Maintaining or Improving your health status in CPA   0' 13' 07secs
January 2013 Debbie Kennedy Oral Antifungals and TDM 00' 03' 41secs  
January 2013 Khaled Al-shair Measuring health status in Chronic Pulmonary Aspergillosis: Lessons we have learnt 00' 28' 30secs  
January 2013 Reyenna Sheehan How to use your inhaler 00' 49' 01secs  
January 2013 Graham Atherton Social support 01' 15' 42secs  
January 2013 Led by Graham Atherton Entire meeting   01' 47' 03secs
December 2012 Led by Graham Atherton Christmas Quiz   01' 19' 59secs
November 2012 Libby Radcliffe Aches and pains 00' 01' 16secs  
November 2012 Malcolm Richardson Everyday moulds 00' 52' 41secs  
November 2012 Led by Graham Atherton Entire meeting   01' 44' 07secs
October 2012 Paul Bowyer Aspergillus research - What's new 00' 01' 39secs  
October 2012 Phil Langridge Nebulisers - What we use and why 00' 29' 04secs  
October 2012 Chris Harris Healthcare at Home 00' 52' 57secs  
October 2012 Graham Atherton Future meetings 01' 11' 55secs  
October 2012 David Denning Q & A 01' 19' 00secs  
October 2012 Led by Graham Atherton Entire meeting   01' 40' 52secs
September 2012 Graham Atherton Latest Advances - Aspergillosis 00' 01' 21secs 01' 26' 12secs
August 2012 Jacky Smith Tackling cough 00' 01' 11secs  
August 2012 Graham Atherton Student Competitions 00' 58' 45secs  
August 2012 Graham Atherton Meeting announcements 01' 04' 23secs  
August 2012 Led by Graham Atherton Entire meeting   01' 39' 15secs
July 2012 Cheryl Pearse How to give up smoking at UHSM 0' 00' 00secs 01' 45' 00secs
June 2012 Caroline Hawkridge Creative Writing 00' 00' 00secs 01' 30' 00secs
May 2012 Malcolm Richardson  The life and times of aspergillus in the home 00' 00' 00secs 00' 37' 26secs
May 2012 Paul Bowyer Aspergillus research - What's coming next? 00' 00' 00secs 00' 26' 44secs
May 2012 Tim Felton Treatment options for Aspergillus 00' 00' 00secs 00' 51' 35secs
May 2012 Graham Atherton Introduction and future 00' 00' 30secs  
May 2012 Livingstone Chishimba Patient meeting - Q & A 00' 15' 54secs  
May 2012 Led by Graham Atherton Entire meeting   01' 30' 00secs
April 2012 William Kidd Atmospheric dampness and ventilation 00' 00' 52secs  
April 2012 Led by Graham Atherton Entire meeting   01' 42' 55secs
March 2012 Marie Kirwan Research on refining diagnostic techniques for airway samples. 00' 00' 00secs  
March 2012 Graham Atherton Future and feedback 00' 53' 25secs  
March 2012 Led by Graham Atherton Entire meeting   01' 43' 50secs
February 2012 Khaled Al-shair Quality of Life assessment 00' 02' 21secs  
February 2012 Graham Atherton Our immune system 01' 12' 00secs  
February 2012 Led by Graham Atherton Entire meeting   01' 37' 19secs
January 2012 Ann Haylett Protecting the photosensitive patient from the sun 00' 02' 58secs  
January 2012 Led by Graham Atherton Entire Meeting   01' 35' 15secs
   
  • Includes Vox-Pop recording information, alternative medications information and information on dietary supplements.
01' 05' 11secs  
December 2011 Led by Graham Atherton Christmas Quiz 00' 06' 43secs 01' 42' 52secs
November 2011 Livingstone Chishimba Patient meeting - Q & A 00' 03' 26secs  
November 2011 Led by Graham Atherton Entire meeting   01' 42' 48secs
   
  • Includes the Himalayan Challenge
01' 25' 40secs  
October 2011 Ray Ashleigh Embolisation 00' 00' 57secs  
October 2011 Led by Graham Atherton Entire meeting   01' 44' 10secs
   
  • Includes discussion of future meetings
01' 00' 08secs  
September 2011 Debbie Kennedy Respiratory Nurses of the Year Awards 00' 00' 00secs 01' 08' 47secs
September 2011 Derek Stewart How to make a difference 00' 00' 00secs  
September 2011 Graham Atherton An introduction to Genetics    
September 2011 Led by Graham Atherton Entire meeting   01' 23' 05secs
August 2011 Nicola Smith Genetic Susceptibility to Aspergillosis    
July 2011 Sue Howard Aspergillus resistance - It's on the increase 00' 01' 43secs  
July 2011 Led by Graham Atherton Entire meeting   01' 30' 54secs
   
  • Includes report on Fungal Research Trust Anniversary meeting and feedback with various projects.
01' 08' 40secs  
June 2011 Sue Howard Aspergillus resistance - It's on the increase   00' 32' 27secs
June 2011 Astrid Leck Fungal infections of the eye    
June 2011 Geoff Scott The History and future of the Fungal research Trust   00' 35' 33secs
June 2011 David Denning Development of new antifungal drugs & combination therapy   00' 22' 43secs
June 2011 David Denning [led by Graham Atherton] ABPA and SAFS 00' 00' 13secs 00' 58' 54secs
June 2011 Graham Atherton Outreach Meeting - Welcome and Introdution   00' 17' 23secs
June 2011 Nigel Clayton Lung function    
May 2011 Caroline Powell Expert patient programme   01' 31' 43secs
April 2011 Nichola Duddy What happens to my sample? 00' 01' 06secs 00' 17' 58secs
April 2011 Caroline Moore Antifungal drugs - Are you getting enough? 00' 00' 10secs 00' 46' 19secs
March 2011 Jane Mabey Computers: what role do they have in Aspergillus research?    
February 2011 Graham Atherton Quality of Life Assessment and Clinical Relevance   01' 03' 47secs
   
  • Includes ABPA & SAFS Project
   
November 2010 Debbie Kennedy A Clinic Visit    
October 2010 Graham Atherton NAC Patient support - Edinburgh   00' 54' 27secs
October 2010 Graham Atherton Aspergillosis Patients Meeting - Edinburgh Introduction   00' 18' 30 secs
October 2010 Liz Smith Aspergillosis - A Personal account - Steph Smith   00' 34' 45secs

 

 

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