Information & Support for Patients & Carers

Welcome

If you are reading this for the first time it probably means that you or someone you are supporting has a suspected or confirmed aspergillosis. There is a lot of information on aspergillosis available on the internet and some of it is alarming, so we should start with the following: there are several different types of aspergillosis, all of which are treatable and it is only acute invasive aspergillosis that needs urgent treatment. You will have many questions about what happens next but let's start with the most obvious ones first. How do my doctors find out which form of aspergillosis I have (if any)?

Diagnosis

DIAGNOSIS

X-ray or CT scan following a detailed case history analysis. Blood and sputum tests or a bronchoscopy may be carried out. More details...

 

Treatment

TREATMENT

A combination of steroids and antifungal medication is usually used. For more details on symptoms, treatment and prognosis go to one of: ABPA CPA IA Sinusitis
Check your drugs for interactions with other drugs in our new database

 

Maintenance

MAINTENANCE

Regular check ups may be needed at first, but once your condition has stabilised these should get less frequent. More details...

 

Carer/Friend

CARER/FRIEND

Aspergillosis is a long term illness and support is important, both emotional and practical. More details...

 

PATIENT MEETINGS (UK) 

Informal patient meetings are held at the National Aspergillosis Centre at the University Hospital of South Manchester on the first thursday of each month. More details..

 

Recordings of Meetings

We record sound in all meeting and then use it to present the slides used  - it is as if you were there yourself!  A new one will be added each month.

 

Other recordings

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Additional information

Aspergillus is a common fungus found throughout the world, spread by microscopic spores which float in the air. We all breathe them in most of the time but most of us have efficient immune systems that kill the spores. Some people do not manage to kill all of the spores; sometimes because they are undergoing treatment that suppresses their immune systems (e.g. transplant patients, bone marrow transplant recipients), but sometimes because they are genetically susceptible (e.g. some asthma sufferers) or possibly because they have breathed in many more spores than is usual. They develop aspergillus infections, known as aspergillosis.

There are several types of aspergillosis which we go into in some detail here, but briefly there is:

Allergic Bronchopulmonary Aspergillosis (ABPA)

You have a fungal infection deep down in your lungs. This irritates the lung tissue and causes scarring. The infection is treated with antifungal medication and the inflammation and scarring is reduced using steroids.More...

Chronic Pulmonary Aspergillosis (CPA)

Your lungs have been damaged in some way in the past (e.g tuberculosis) and the fungus can grow in the effected area. Sometimes it grows as a fungal ball (i.e. aspergilloma) in the cavity. Sometimes several cavities are involved (CCPA). More...

Invasive Aspergillosis

Almost exclusively effects very highly immune suppressed people e.g. Transplant patients, bone marrow transplant recipients. Must be treated very urgently which is why this group of patients are retained in hospital during the danger period of their treatment.More...

Aspergillus Sinusitis

Chronic aspergillus infection of the sinuses. Still controversial but an increasingly accepted diagnosis.More... 

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